Wow..I just finished a book called Saving Sammy by Beth Allison Maloney. What a wonderful book. I just joined her fan page on facebook. She is the national spokesperson for the PANDAS Foundation. I am highly impressed by her book and the journey that she and her three boys went on for several years of their life.
Patrick's doctor gave me a verbal diagnosis of PANDAS about seven months ago right before we started the IVIG. I feel like we have really found a link to explore with PANDAS and after reading Beth's book it really shed light on so many symptoms and issues involved with strep infections and PANDAS. I also firmly believe that not only Group A but also Group B strep is involved in these infections.
It was really exciting to read this book. I highly recommend it to all parents who have children on the spectrum.
Overall, we have had a typical week. He was up last night and couldn't sleep very well but is really seeking me out for attention. Which is always a great thing!
I will share more PANDAS information as I do a little more research. I knew that the IVIG would help treat it but there is so much more to the whole issue. Patrick has his 7th IVIG this week in Nashville so be sure to keep him in your prayers.
Very interesting. I've always thought about PANDAS, but I don't know much about treatment. Our DAN said she didn't think Hayden had it, though. Who knows...but his tests have been coming back really good lately. I hope to see some big improvements soon. :)
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